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La fratrie d’adultes porteurs de trisomie 21 : une approche à partir des représentations comparées des frères et soeurs et des parents d’adultes avec trisomie 21

Abstract : The relationships among siblings in families in which one of the children who have become adults is affected by Down syndrome have received little critical attention. Such relationships, built during childhood, enter a new, critical phase with adulthood, as it may become necessary for siblings to take over the responsibility of supporting the adult with a disability when the parents become older. The issue is all the more important as the life expectancy of adults with Down syndrome is increasing. The aim of this study is to better understand the specificities of sibling relationships. It is based on the comparison of the perceptions of two generations. The survey was conducted among 43 adult siblings and 57 parents of adults with Down syndrome. This questionnaire-based analysis (using both quantitative and qualitative methods) examines the nature of those relationships in connection with the living environment of the adult with Down syndrome: regular employment, sheltered employment, attending an occupational centre or back with their family.
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https://hal.univ-rennes2.fr/hal-01713440
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Submitted on : Tuesday, February 20, 2018 - 3:51:53 PM
Last modification on : Monday, March 26, 2018 - 2:43:59 PM

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Lise Lemoine, Benoit Schneider. La fratrie d’adultes porteurs de trisomie 21 : une approche à partir des représentations comparées des frères et soeurs et des parents d’adultes avec trisomie 21. Revue Francophone de la Déficience Intellectuelle, Revue francophone de la déficience intellectuelle, 2014, 25, pp.148-173. ⟨10.7202/1028219ar⟩. ⟨hal-01713440⟩

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